Withholding nutrition at the end of life: Clinical and ethical issues Many factors impact the quality and quantity of dietary intake in community-dwelling older adults (Chap. Epub 2020 Mar 4. Medication Aides, Assistants, Technicians. Despite the knowledge that starvation and dehydration do not contribute to patient suffering at the end of life and in fact may contribute to a comfortable passage from life, the ethics of providing or not providing artificial nutrition and hydration (ANH) continue to be hotly debated [34]. Maintaining hydration at the end of life is both controversial and emotive. https://doi.org/10.1016/j.clnu.2016.02.006. Mulloy, Cathy World J Gastroenterol 20(24):77397751, Mon AS, Pulle C, Bell J (2018) Development of an enteral tube feeding decision support tool for hip fracture patients: a modified Delphi approach. Parenteral hydration and nutrition in the geriatric patient: clinical and ethical issues. Palliative care measures, such as oral swabs for dry mouth, should be instituted. When oral intake is poor or not recommended, the use of intravenous fluids may be thought of as a method of preventing dehydration. Join ANA and Your State Nurses Association, Online Journal of Issues in Nursing (OJIN), || 2023 National Magnet Nurse of the Year ||, Magnet Application Manual Updates and FAQs, || 2023 Pathway Nurse of the Year Award ||, Nursing Continuing Professional Development, Advanced Practice Provider Fellowship Accreditation (APPFA), Practice Transition Accreditation Program, Search All Workshops, Webinars and Online Courses, Co-located ANCC National Magnet Conference and ANCC Pathway to Excellence Conference, Leadership in Nursing: Qualities & Why It Matters. https://doi.org/10.1377/hlthaff.2017.0174. CAS Withholding hydration and nutrition in newborns. SAGE Open Med. Does dehydration still sound cruel? nutrition and hydration Google Scholar, Saladin N, Schnepp W, Fringer A (2018) Voluntary stopping of eating and drinking (VSED) as an unknown challenge in a long-term care institution: an embedded single case study. Nutrition and Hydration The second is to explain how nurses can work with other health care professionals, patients and surrogate decision-makers who are representing the patients preferences. Yale J Biol Med 91(2):173176, PubMed Grant, Alicia P. Assistant Professor, The University of Texas Health Science Center at Houston, Sign In to Email Alerts with your Email Address. This article summarizes the American Medical The motivation behind families requesting staff to stop oral hydration or nutrition is often based on an interpretation of a prior expressed wish. Older adults are predisposed to nutrient deficiency due to a decline in total and resting energy requirements associated with physical inactivity, loss of lean muscle mass, and increased adiposity that gradually reduces food intake while vitamin and mineral needs remain unchanged or increased [2]. End-of-life care in patients with advanced lung cancer. about the use of artificial nutrition and hydration (ANH) especially by Bethesda, MD 20894, Web Policies The possible benefits of feeding via ANH include improvement in the patients quality of life and improved nutrition with decreased incidence of bedsores and other infections [35]. official website and that any information you provide is encrypted This article explores various cultural perspectives of withholding and withdrawing of life-sustaining treatment utilizing a case involving artificial nutrition and hydration (ANH) to guide ethical discussion. Springer, Cham. Food insecurity, defined as limited or uncertain availability of nutritionally adequate and safe foods or limited or uncertain ability to acquire acceptable foods in socially acceptable ways, encompasses not only the lack of economic resources to obtain nutritionally adequate food but also the inability to access and appropriately use food. Ethical considerations at the end-of-life care. Clin Med (Lond). Other terms used in the literature include medically assisted or medically provided nutrition and hydration; these terms emphasize how ANH does not fundamentally differ from other treatments. CAS The case of Terri Schiavo resulted in substantial media attention is it? Google Scholar, Del Ro MI et al (2012) Hydration and nutrition at the end of life: a systematic review of emotional impact, perceptions, and decision-making among patients, family, and health care staff. In rarer circumstances, the family may choose to take the child home. When an individual is near the end of life, families may feel concerned about the effects of decreased or absent food and fluid intake. The primary focus in decision-making should be the interests of the child. J Palliat Care. What Is Evidence-Based Practice in Nursing? hydration to demented nursing home patients: A qualitative study, Long-term outcomes of patients receiving percutaneous endoscopic 2009 Oct;19(10):972-8. doi: 10.1111/j.1460-9592.2009.03027.x. The use of assessment tools like the Mini Nutritional Assessment (MNA) is not routinely applied across the clinical environment, and serum albumin level, although it is heavily relied upon as a sole indicator of nutritional status, actually reflects primarily the inflammatory state rather than the true body store of essential nutrients [15] (Chap. We use cookies to distinguish you from other users and to provide you with a better experience on our websites. official website and that any information you provide is encrypted Would you like email updates of new search results? Grumbles, L. Lee Evidence for palliative or life-sustaining benefits for ANH are reviewed JAMA Intern. Across many settings globally, when oral intake is deemed unsafe, decisions to withhold oral feeding and to forgo artificial means of providing nutrition are deemed to be ethically and legally sanctioned when the decision is made by a capable patient or their legally recognized substitute decision-maker. Swetz, Keith M. disease, Projection in surrogate decisions about life-sustaining medical J Nutr Elder 29(4):347385, van de Vathorst S (2014) Artificial nutrition at the end of life: ethical issues. 2010. Nurs Clin North Am. As saliva production decreases, the sensation of taste may be altered, which can reduce an individuals desire to eat. Ro MI, Shand B, Bonati P, et al. BMC Nurs 17:39, Meier CA, Ong TD (2015) To feed or not to feed? 2007 Apr;33(4):215-8. doi: 10.1136/jme.2006.017038. JPEN J Parenter Enteral Nutr 43(4):526533, Jones BJ (2010) Ethics and artificial nutrition towards the end of life. The American Society for Parenteral and Enteral Nutrition (ASPEN) Position Paper focus is on applying the 4 ethical principles for clinician's decision-making in the use of artificially administered nutrition and hydration (AANH) for adult and pediatric patients. 2010. dementia, Assessing Competence to Consent to Treatment: A Guide for Physicians Google Scholar, Bernstein M, Munoz N (2012) Position of the Academy of Nutrition and Dietetics: food and nutrition for older adults: promoting health and wellness. Curr Nutr Rep 4(2):176184, CrossRef WebThis topic last updated: Mar 22, 2021. https://doi.org/10.1007/978-3-030-63892-4_21, DOI: https://doi.org/10.1007/978-3-030-63892-4_21. A nutritionally vulnerable older adult has a reduced physical reserve that limits the ability to mount a vigorous recovery in the face of an acute health threat or stressor. It also emphasizes that other considerations may be relevant to parental decision-making. for this article. Coyne, Patrick J. hasContentIssue false. Would you like email updates of new search results? Similarly, symptoms of pain or dyspnea may require initiation or adjustment of analgesia and/or sedation as for any other terminally ill patient. Clin Nutr 37(5):15691574, Diernberger K et al (2021) Healthcare use and costs in the last year of life: a national population data linkage study. Accessibility Food and drink, being central to celebrations of life in most cultures, are often strongly associated with nurturing and positive emotions. Some examples of children in this group include those with terminal illnesses in the final stages of dying, infants born with heart defects that are ultimately incompatible with survival beyond a few months and for which transplant is the only therapeutic option, infants with renal agenesis, or infants with a severe gastrointestinal malformation or a disease that is destructive to a large portion of the gastrointestinal tract, leading to total intestinal failure, and whose parents have opted for palliative care rather than intestinal transplant. Artificial saliva also may be used to reduce dry mouth. placement, The effects of fluid status and fluid therapy on the dying: A The practice of medical nutrition and hydration provokes both supportive and opposing views. Ivanovi N, Bche D, Fringer A. When oral intake is deemed unsafe, decisions to withhold oral feeding and to forgo artificial means of providing nutrition are deemed to be ethically and legally sanctioned when the decision is made by a capable patient or their legally recognized substitute decision-maker. PMC J Pain Symptom Manag 50(6):887890, Henry B (2020) End of life feeding: ethical and legal considerations. Other symptoms, such as nausea, vomiting, and constipation, may occur. Being medical treatments, the initiation, termination, and withholding of these modalities must be medically and ethically justified [32, 35]. J Affect Disord 136(3):212221, Djernes JK (2006) Prevalence and predictors of depression in populations of elderly: a review. Psychooncology 21(9):913921, Chiu TY et al (2004) Terminal cancer patients wishes and influencing factors toward the provision of artificial nutrition and hydration in Taiwan. Another misperception at the end of life is that the lack of sufficient fluid intake can cause discomfort. From the outset, we consequently note that nutritional intervention in this phase of life should be individualized [30], particularly given there are no clear criteria to ascertain the beginning of the dying phase. At this point, decisions regarding life-sustaining interventions including ANH should be re-evaluated in the individual context of that childs ongoing goals of care. In some cases, the familys insistence that the patient take nutrition may cause conflict even before the implementation of ANH becomes the only option. and transmitted securely. Marco, Catherine A. As healthy people, we experience sensations related to hunger and thirst as signals from our bodies that nutrients and fluids are needed to maintain energy levels and promote normal functioning of our cells, tissues, and organs. Lyckholm, Laurie J. be discontinued? PubMed The .gov means its official. 2011. WebHPNA Position Statement: Medically Administered Nutrition and Hydration 011320203 administration of food and fluids is a basic human right and withholding them is prohibited.6,21 Over the years, terminology has changed from artificial nutrition and hydration to medically administered nutrition and hydration to reflect that it is a Proc Natl Acad Sci U S A 110(15):57975801, CrossRef
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